Tag Archives: walking

All Things Me

Good things:

  1. My daughter is home from spending the summer with her dad
  2. School started yesterday and my kiddo exclaimed it was great and she loves her teachers.  (whew)
  3. I have energy to do things

Annoying things:

  1. If I try to walk around (shopping), I inevitably will continue to do it way past the point I should have stopped.  I swear I thought both my feet were broken during school shopping.  It was to the point I had to take baby steps and walk very slowly.  It was, well, horrible.  It’s not only the feet but also travels up my legs and in to my hips.  I get really stiff.  It was the first time that I thought it would be great to have a cane at that time.  (That is something I really don’t want to have but if I ever have to I’m getting a cool one with lots of color and some cool abstract design.  I’d also look for lots of bling on it!)
  2. I’ve choked 3 times in the past week while drinking water.  I’ve also spilt it down the front of me.
  3. I’ve had some slight tremors in my hands and also have some dexterity issues in them also.  It doesn’t happen constantly though so that’s good news.
  4. One day I was experiencing vertigo & exhaustion in the morning.  I contemplated going home from work but battled through it since it only lasted a couple of hours.
  5. Stairs in the morning = Good.  Stairs in the evening = Bad.  Half of the nights I won’t travel up the stairs to tell my daughter goodnight.  We have to say the goodnights on the main level of the house.
  6. I was stressing myself out by trying to meet a deadline for some sewing I do.  You see I like to make fleece hats and was thinking I would have a booth at a local celebration to sell them.  So I was really pushing myself.  There was one problem after another.  Lots of ripping out.  And then the big thing that clenched it….my sewing machine broke.  Well, I went out and bought a new one as I was still determined.  I get it home, set it up, and can’t get the thing to function correctly. (I also didn’t want to read the instructions).  At that point, I knew that fate was definitely telling me something.  So, I cancelled my registration to sell and now all the fleece is in piles in my dining room.  The one thing I noticed though was that my stress levels went down.  So, this is a good thing after all I imagine.  (I just have wayyyyyy too much fleece now.  I mean it’s seriously like a fabric store.)
  7. Went to the thyroid doctor this morning and my levels are off.  So, another reduction in the medication.  Oh, but then she tells me my thyroid is slightly enlarged and was asking me if there was any thyroid cancer in the family.  *sigh*  So, in a few days I go have an ultrasound on it.

Posted by on August 22, 2012 in Life, Multiple Sclerosis, Thyroid


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Heat Wave

I love the summer months and the heat. I prefer hot weather over cold weather (winter sucks! ((I’m not a fan)) ). I’ve loved growing up in central Illinois in the heat and humidity of summertime. The heat never really bothered me. Well, that seems to have changed.

Okay, so I thought that my intolerance to heat was from surgery back in 2006 where I was completely neutered (ha ha ha – TMI for the men reading this post). I had the full surgery back then because of massive migraines that were like death. The surgery was a success in that those particular types of headaches went away almost magically.

I was chalking up my intolerance to heat due to hot flashes, but now I’m thinking I have been wrong on that. I might have had a few episodes directly related but I now think that it is just another MS symptom. My hands can be cold to the touch, but they will feel hot to me and will be bright red (like a lobster) from the wrist down for no reason at all. (Same with my feet but more so the hands) I can sit up in bed watching TV and as soon as I lie flat on my back to go to sleep, I get a rush of heat. It only lasts about 1-2 minutes thank goodness. I went to Cancun last fall and had a horrible, horrible time because of the heat. I have gone on longer walks (think hiking) and almost immediately my extremities swell up and are super hot. It becomes unbearable. I get lightheaded and just want to sit and get out of the sun.

I have no idea if this is the same symptoms as others with MS. I just feel like mine is probably related since I’ve noticed more and more my inability to just stay out in the heat.

I guess I can say I have an intolerance for cold too. Ever since the late 80’s, I have had cold feet and hands to the point that they go numb and all the coloring goes out. Yep, I was diagnosed with Raynaud’s back then. Now I see info on the web that Raynaud’s could just have been caused by MS (other other diseases).

It’s frustrating to think I’ve had this disease for many, many years and it took this long to finally have it discovered.

I have just one thing to say to all those people from my past that might have thought I was faking symptoms or being a woosie, “I WASN’T FAKING AND I’M NOT NOW!”

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Posted by on February 15, 2012 in Multiple Sclerosis


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Day 3: Frustrated as all get out

It’s 6pm and I tell you I am so ready to just crawl in to bed and not have to talk or do anything else.  Talking was crap today.  Crap, crap, crap.  Grrrr.  I have been slurring like a drunken sailor!  On top of that, I had a task to type out a bunch of addresses this morning so I could get to the post office.  Okay, not really a bunch.  Just about 25. Took me FOREVER!   Might as well throw in all the issues I was having while eating too.  It definitely was not normal eating.  I was dribbling (ewww) and felt like I had to open my mouth super wide and then concentrate…yes, concentrate…on what I was doing and getting it chewed up.   Licking my lips was also….weird.  Hard to explain how that felt.  My eyes have been doing some freaky things to.  As I sit here they will start repeatedly blinking ….like a twitch almost.  They also just feel like I can’t focus on anything at all.  And talk about feeling spacey and tired.  Might as well throw in that I tripped a few times too.  Ugh.

For these types of symptoms this seems to have been the worse day for them.

Of course, it’s annoying when I’m repeatedly asked what I said.  I get so frustrated that I just say STOP.  I can’t help it.  If you can’t understand me then just stop.  Stop, stop, stop, stop.  I just really wanted to scream.  It’s so FRUSTRATING!!!!!  My daughter (she’s 11) and I went shopping today.  She is so understanding and ‘mature’ for her age.  She ‘gets’ that I can’t help these things and she helps.  But sometimes she goes into that ‘Ask Me A Million Questions” routine and today that happened a lot.  After saying STOP about the 3rd time she did.  She just says ‘It’s okay.  I understand.’.  And I honestly think she does.

I hope my sleeping is not woken by another headache. Last night the glorious headache arrived right about 2am.  It always seems to be that time.  It was a lovely headache behind my eye.  Those suck.  Well, all of them really suck.

SUCK SUCK SUCK SUCK BLECK!!!  Yep, that’s how I feel.

Tonight a little worry has started to creep in to my head.  My symptoms are noticeable today…a lot.  They weren’t like that before I don’t think.  Hell, I could just not remember. But it hasn’t happened for quite some time. Another reason I think it took so long for the diagnosis. Anyway, now I feel like they are worse so that makes me wonder how bad they will get.  Am I going to be able to even talk a year from now?  Will I be able to feed myself?  Will my eyesight get so bad that I’ll have to have a service dog?  Will I lose the ability to type or write?  Really scary stuff now. *sigh*


Random Note here:  I want to thank all those that have commented.  It helps to know that someone out there knows what it is like.  THANK YOU!!!!

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Posted by on January 7, 2012 in Multiple Sclerosis


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