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Ultrasound from Hell and what-not

So, it’s been forever and a day that I’ve written here.  My life has ramped up with activities since my daughter got back from the summer at her dads.  I’ve gone from a very mello pace to go-go but not quite to the go-go-go speed yet.

Let’s see, I owe you all a follow-up to the ultrasound from hell (thyroid).  First, the test found I have Hashimoto’s Disease which I already knew about 25+ years ago.  So that was a ‘whatever’ moment.  They also noticed a node/nodule on the front portion of my thyroid.  No wonder I hated it when the tech was doing that portion of the test.  Truly hated, hated, hated it!  I go back in a year to repeat the ultrasound to check on the nodule size.  My thyroid medicine also has been reduced a lot.  I get the lovely pepto bismal colored pills now.  At least I can find it if I drop it!  

Moving on to the episode of hell during the ultrasound…..  I did actually go to my primary doctor after calling my neuro first, then calling the endo to let them know.   Off I go to the primary care.  Everyone seems to agree it was probably a vasovagal response which is nothing to worry about if it doesn’t happen repeatedly.  However,  what about the vibrations in my arms?!  Well, I seem to have stumped everyone with the description of that.  A jackhammer inside my skin and my arms not visibly shaking (or I don’t think they were).  My primary thinks that it might possibly have been some type of seizure since I was wiped out with exhaustion the rest of that day and all the next day.  Verdict:  Well, if it doesn’t happen again don’t worry about it.  Your brain was probably throwing all sorts of electrical charges out once I sat up and whatever was ‘pinched’ to cause the feeling of ‘kill me now I feel like shit’ became unpinched.  My response:  Thrilling  That’s sarcasm folks.    

I haven’t had any more episodes and I’ve actually been feeling pretty good.  Every day is different and it’s always different with intensity too but I’ve been good in general.  Now I wish I could stop eating and get control of my weight issues.  grrrrrrr  I swear part of my brain is damaged by the MS that controls eating.  I swear!

I have basically stopped going to workout because…..my daughter is back.  Instead of going there, I race home after work to pick her up and then race her over to some activity.  We’ve got volleyball, tennis, volleyball, and pageants.  Oh, and now…after months and months and months of no action on the modeling/acting front for her….she is getting some inquiries from agencies.  Long car rides to come from it all.   Whew!  On top of that I try to take pictures of her  and work on pageant clothing (sewing).  So, maybe I’m not really keeping stress out of my life.  It doesn’t help matters I’m also drinking a crap-load of caffeine again which makes me very irritable.  I must, must, must stop that again!  

What else is going on?  Well, my daughter’s fish died so we had to have a funeral for it last week.  I tend to laugh at inappropriate times because I find some things funny that others wouldn’t.  In any case, I did have to cover my face when I found out when my daughter and hubby were getting the fish out of the tank the tail fell off.  I know, I know!  It shouldn’t be funny.  Um, well it was hilarious to me as I stood there with my hands over my face and laughing so hard I’m crying. I alway start crying when I laugh hard.  It’s a family trait it seems.

Okay, enough for today.

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Posted by on September 14, 2012 in Humor, Life, Multiple Sclerosis, Thyroid

 

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Head Tilt Mayhem

Yesterday I experienced something I never ever ever want to experience again.  EVER!

Let’s start at the beginning.  I felt pretty good for the most part until about 12:30pm.  Oh, I guess I should tell you that Thursday I ended up leaving work a few hours early because I was stupid and went to read outside during my lunch break.  I lasted a whopping 5 minutes and then came in as I was utterly exhausted.  The MS exhaustion that is and I couldn’t keep my eyes open. So off I leave for home and crash the rest of the day in my bed.  Okay, so Friday I wake up and feel good.  I little achy but that is my norm.  Around 12:30pm I head over to my thyroid ultrasound appointment.  All is well as I get there early and get in early.  Woot!  Then it happens.

The ultrasound tech lady asks me to lie down with my shoulders at the top of the pillow so my head is tilted down.  So I hop up on the table and proceed to do as she asked.  Immediately, I’m feeling dizzy and a little odd.  I wanted to watch the screen as she started to do the right side of my neck but that was making the feeling rose.  So I close my eyes.  That doesn’t help. The dizziness continues to get worse, then I start sweating and I’m getting chills like you do when you have the flu.  By the time she moves over to the left side of my neck and telling myself to take deep breaths and relax.  However, now I can feel my hands starting to tingle and I’m really not feeling too hot. She finishes on the right side and tells me not much longer.  I haven’t uttered a word the entire time and am praying over and over to make her get is down as fast as she can.  Well, the last part she ultrasounds is the center of my neck and that really, really, really makes me feel horrible.  Its so uncomfortable and my entire body is hating it and making me feel horrible.  She finally finishes and I slowly raise up to sitting level and I tell her I have to sit awhile before I go. When I sit up things get worse if that is possible.  Both my arms from elbow down through my hands start vibrating internally.  I’m not talking tingling.  This is full out vibration as if I was holding a jack-hammer but it is inside my body.  My legs are weak and basically my whole body and I feel I should get to the bathroom.  I’m sitting there thinking something is seriously wrong and maybe the tech should be calling a doctor. But I don’t say a word and actually was miffed that the tech didn’t notice I looked like death and call someone herself.  Pfft.  Well, the vibrations start to diminish some and I decide to head to the bathroom out in the waiting room area.  My whole body was soaked and I’m sure I looked like death walking there.  I made it though and stay in the bathroom for awhile until I don’t feel quite as bad.  I look at my palms and my feet and they are bright red.  Well, I tell myself to walk out to my car and sit there as long as I want.  I make it out to the car and know there is no way I can go back to work but I’m also thinking there is no way I can drive 25 miles home. I try to think how I could get home without driving.  The hubs doesn’t work in the same town or even close so I would be waiting forever for him.  I supposed I could call people at work, but then I think that would mean I would have to leave my car in the clinic’s parking and it would get towed if left overnight.  I think I could possible get two people from work to help out but I don’t want to be a burde.  Soooo, I decide I will drive home.  Yep, stupid.  The drive home I have the air conditioning full blast and I’m still sweating.  I’m so out of it that it is very hard to focus on anything.  I’m driving like a zombie I imagine.  I took it slow.  I talked to myself (inside my head) the entire time and prayed and prayed to make it home safely.  I had to repeatedly blink my eyes to focus.  Towards the end of the drive I had to start squeezing my face or pinching myself to focus.  Well, I did make it home and I tore my clothes off as I get inside and lie down and fall asleep for 2 hours.  The rest of the day I spent in bed because I was wiped out.  I didn’t feel that horribleness anymore but it took its toll.

It’s the next day now and I’m weak all over. A trip to the grocery store was tiring.  Taking the laundry downstairs and then bringing it up after it was finished was tiring.  Every time I have to go up stairs or down stairs I seriously think I need to consider moving to a new home that is single level.  This has been in my head now for quite some time.  It seems inevitable that this house will not work out for me with MS. Today I also have stiffness in the very lower calves and ankles.  Yep, another thing I’ve noticed.  I wonder if this is what they call spasticity.

Yesterday was frightening. I had moments where I seriously wanted to die rather than feel that horrible. I really thought I was going to pass out driving home.  How stupid of me but I didn’t see any other choice.  You see, I hate asking for help and honestly I don’t even know who I can ask for help.  Everyone that I know has there own problems and I don’t want to become one of them. I’m pretty much a loner and I don’t reach out for anything. I’m not social so my circle of friends is very very small and practically non-existent.  I have people that are acquaintances and are my friends but we don’t go out and do things together.  So there is a limitation of how much I would open up.  It’s very hard for me to open up.  Too many things have happened in my life that I’ve really closed myself.  But, then again, I’ve always been this way. It’s been only a few times that I’ve made really good friends and then circumstances (distance) pull us apart and it fades away.

I guess with yesterday’s head tilt mayhem, I’ve finally had a scary moment which I believe was MS related.  I’m pretty sure it was related just because I tilted my head back.  Lesson learned:  Never ever tilt my head backwards lying down or even standing up.

 
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Posted by on August 25, 2012 in Life, Multiple Sclerosis, Thyroid

 

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Thyroid is Wacked Out!

I’m certainly glad that I demanded the additional thyroid tests.  The numbers are,,,,not …at…. all….within normal range.  So, I get to go see an endocrinologist……..IN JULY!    Hmm, that seems like a long time away.  *sigh*

 

 
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Posted by on May 10, 2012 in Multiple Sclerosis, Thyroid

 

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It burns baby, burns!

Oh, Betaseron, I do believe you are giving me major, horrible, nasty acid reflux. Now, it doesn’t say on your side effects that you can cause this BUT I haven’t experienced it before starting you and now I have it ALL THE TIME! Non-stop. I’m going to have to start carrying around Tums wherever I go because I’ve been suffering all day due to the lack of said item.

I also do believe you are screwing up my thyroid. Now, I’ve been on thyroid medication since my early 20s and I’ve always had to have my Synthroid dosage adjusted up or down then back up or down about every 6 months. Nothing stable with my thyroid I’m tellin ya!. But, now I do believe you are behind some of the other ‘things‘ that have started happening regularly since starting good ole beta (shortened for Betaseron if you didn’t know. *giggle*).

I’ve got a call in to my neuro about these things. It’s not that I can’t live with these but I’d like to know if I have to go get more blood tests and have my other meds adjusted. Who to call I ask myself? My primary dr? (Boo hiss!) Or my neuro dr that seems to know everything (and I like her)? Hmm, I choose neuro dr!!!

La tee da tee dah de dummm. I’m patiently waiting for a call back.

 
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Posted by on February 17, 2012 in Multiple Sclerosis

 

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