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About

Yesterday, January 4th, 2012, I was diagnosed officially with multiple sclerosis.

It took a year and a half for a diagnosis.  Waiting that freaking long is very stressful.  I’m so happy I don’t have to worry about it any more.   I was relieved…yes, relieved…when the diagnosis came.  I sat there calmly and actually I laughed slightly because I had a name for all the weird crap going on with my body.

Basics about me are I’m 46 years old, a mother of one 11 year old girl, and married.  Just your typical person really.

This all started when I was getting bad headaches in the middle of the night and they would stay the remainder of the day.  I had my first MRI and was told I had multiple lesions on my brain.  I went and saw the images and yep, spots all over.  Left, right, up, done, all around they were there.  Yesterday was my 6th MRI and FINALLY there were changes in the MRI from the original.  The spots were also lit up like a Christmas tree showing brightly in all the glory on the right-side.  I guess it’s active right now.  I had also gone through bunches of blood tests to rule out so many things so I know this diagnosis is correct.

MS seems to affect me with headaches, garbled speech on occasion, and memory issues. I also get random pain in my muscles and pain in my joints which really isn’t the joint but the only way I can describe it. My eyesight in my right eye has also changed a lot but still able to see with glasses. There are some other things too…anxiety, depression, irritability, mood swings, tingling sensations, vertigo, tripping, running in to things, unable to pick up things (clumsy fingers), sometimes some tremors, aches….etc etc etc.

This blog is for me to bitch & moan.  I need it!

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3 responses to “About

  1. Carla

    January 11, 2012 at 1:12 pm

    Hey, say what and how you need to say it, girl! I feel ya. MS is sure not what I had planned in my life, for sure. I had one kid in highschool and the other in middle school when I was dx’d. They were active, we were active and then, life seemed to keep going, even though my “activity” sorta slowed. I’ve learned to adapt, but it’s difficult to balance family (I also worked some) and other stuff and MS just puts a big boulder on one side of that scale. Glad you are in here. I plan on reading your stuff more often. I’m not very good about everyday reading cause I’m writing a book, too. But, I’ll be reading for sure!

     
  2. Willeke

    July 25, 2012 at 12:51 pm

    Hi!

    I also feel ya girl! Been there, done that type of thing eh? Just wondered why they took 6 MRIs when they could’ve gotten clear results from a spinal tap. MRIs are no fun, especially when you suffer those awful headaches (like myself) plus they are much more expensive than spinal taps.

    But I hear ya, I was also relieved when I could finally plaster a name onto all my symptoms. Hopefully you’ll be OK without meds but please keep your hopes up. New tablets are already on the market and others are coming out later this year and in the following years, so there’s lots of choice medication wise these days.

    And yep… the weight comes on as soon as you take steroids to ease the pain, I gained 40 pounds in one year because of several steroid treatments. Mind you, I also like my Ben & Jerrys ice cream :D)

    Feel free to drop a line if you want to vent OK, us MSers only have each other to know what it’s like to have MS, plus Facebook is a brilliant tool also. Lots of MS groups where people without MS are not allowed so you can vent big time :D)

    Thanks for following my blog, I hope you’ll find something that will help you or make you understand our silly brain.

    Take care!

     
  3. Kip Light

    August 13, 2012 at 2:56 pm

    I take great pleasure in notifying you that you have been nominated for/awarded the Sunshine Award. Your award and the rules await you at your earliest convenience at this link

    http://kipsthoughts.wordpress.com/2012/08/13/sunshine-award/

    I would also like to take this opportunity to say thank you for being a constant ray of light in my sometimes dark world. 🙂

     

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