Latest Updates – June 22

22 Jun

So what has been happening with me?  Let’s see:

1.  On June 5th, I had blood work taken again.  My arms are getting scar tissue and I wonder how many more times they can actually draw from there.  The young guy seemed to want to keep pushing the needle through  and out the back of my elbow before all 4 vials were taken.  I just sat there and acted like nothing was wrong.  Hey, he complimented me saying I definitely didn’t look my age so I was already in a good mood and liked him. lol!  The results came back that the liver enzymes (ALT and AST) were slightly elevated.  Not much this time but a little.  So my doctor advises to go back on the 19th and repeat the test and just keep my betaseron to 1/2 dosage.

Fast forward to the 19th I get more blood work done.  Both the ALT and AST were right smack dab in the middle of the normal range!  WOOHOO!  I’m thinking that I might be told to increase the dosage slightly and see how it goes then repeat labs again every 2 weeks.  (I think I will be going to get lab work every 2 weeks for the rest of my life!).  On the call from the dr they asked about my pain.  Well, I live with pain every day in the lower parts of my body.  The more active I am the worse the pain will be and can lay me up for 1-3 days after that activity.  On a typical day, I feel pretty good in the morning and by the afternoon I hurt more.  It’s hard to describe the pain.  It’s some muscular and definitely around joints.  It always starts around my feet (because I already have some pain there when I wake up even) and then around my knees.  Nothing I take helps with the pain it seems so I don’t bother anymore.  It is so sporadic as it is.  Anyway, I told them my pain was about a 7 on a scale from 1 to 10.  I hate when they ask that.  I have a high tolerance for pain and I’m not exactly sure what to say.  *shrugs*  So, now I am to not take the medicine – that’s right, not – and call them in a week to let them know how I’m feeling.   I didn’t even wonder why they were asking because ever since I started on the medication I’ve seemed to have gone downhill.  More pain, less ability to do things, etc etc.  One part of me would love not to take the medication but another part of me doesn’t even want to think about life in a wheelchair someday.  Oh, and it doesn’t help that Entertainment Tonight has been having stories on celebrities with MS this week.  It’s too  ‘in your face’ for me.  I guess I’ll just have to wait and see what she says next week when I talk to her.

2.  I’ve put myself on a diet.  After waiting for a diagnosis for over a year, then getting the diagnosis, then starting medication, I put on too much weight.  Not only did I feel crappy because of all the MS stuff, and that my thyroid was messed up, but I also felt really horrible mentally about myself and physically I hated myself and was so uncomfortable.  Sweets and fast food are my downfall. I get addicted FAST to them.  So, I have gone back on the Ideal Protein diet which is the only thing that has ever worked for me it seems.  It eliminates almost all sugars and carbs.  I felt better after only a few days of starting!!!  In fact my cravings are gone.  I made a homemade cheesecake for Father’s Day and took to my parent’s house to celebrate with some of my sisters.  Guess what?  I wasn’t even tempted to eat it.  Now, that is a amazing for me!

I have it in my head that this time I will stick with it until I get the weight all gone.  I’m hoping I will have a big chunk gone by the time my daughter returns from WI for the summer.  I’m not even telling her I’m losing.  I want it to be a surprise.  She doesn’t read this blog (I don’t think) so this won’t let her in on the secret.  😀  So far, I’m down 10.6 lbs in 2 weeks.  YAY for me!!!

3.  My work has been super kind to me and letting me work from home.  I tell you that has really helped.  I can take breaks and put ice on whatever hurts and just de-stress.  Then get right back to work.  I’m very thankful for this…very.  When I need to be in the office (like today and next week) I will be at my desk, so I do what is needed and when it is needed.  I’m thankful for a workplace like I have because they are very flexible for me.

4.  I’ve been getting some narly headaches again.  They were gone for awhile but this month I’ve had 4 doozies (sp?) already.  They suck.

5.  I got some weird tingly, hair in my mouth sensation on my upper lip, right side only, that lasted about 1.5 weeks.  That was weird and strange.  I’m glad THAT is gone now!

That’s about all I can think of for now.  Short post I suppose.  I feel like I’m not quite as negative as I have been in the past many months.  My stress levels seem to be lower and I’m not quite as depressed.  That has probably something to do with the decrease in medication as well.

For those of us with MS, I wish you well.  Always remember to have Hope, Faith and Courage!!!


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Posted by on June 22, 2012 in Life, Multiple Sclerosis


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