I haven’t really had much to write about so I’ve been kind of quiet with posts. Sometimes I just can’t even figure out what to write about. This all must be extremely boring to read actually. Who really wants to hear about all the crap going on in my life with this MS? Sometimes I just feel like I’m a whiner or something. *smile* Well maybe I am! This is the only place I can whine. I hate whining to people in person. So, I do it here.
Here comes the whining….
I am now on the .50 dosage of the medication. The first one at this level I shot in to my upper arm area. This was the first time that I had muscle ache/pain lasting for about 48 hours. Certain movements of my arm were very uncomfortable. But I did survive it.
The last several days I’ve had all the muscle weakness pain crap going on. It feels like I was in a bad accident with the type of soreness this is. Today my upper back/neck is messed up even worse with sharp pains. I have limited range of turning my head either direction and it is stiffening up even more as the hours tick by. *sigh* The sucky part of this muscle crap is that I take Flexiril every night before bed. The nights I have the Betaseron shot I take two instead of just one. You would think that taking a muscle relaxant like this I wouldn’t have any pain when I wake up. NOT! On top of that my eyes are killing me and my vision was blurry today when I was driving. That’s always fun especially with the monsoon winds that seemed to be occurring at 5AM this morning.
I decided to give up pop (soda) for Lent and so far I haven’t slipped up! (amazing for me. ha) I have been drinking more water and slowly also trying to kill my tea addiction. I also decided to not eat any candy and to try to avoid high-fructose corn syrup (article about issues with HFCS). I’m trying to give up the other desserts & sweets too but so far that has been a complete losing streak.
I started taking Evening Primrose Oil capsules (1300mg) and Bee Pollen (500mg right now but will probably up to 1000 in about a week). I’m also going to start B12 supplements.
It seems I have just two side effects that I can figure out that is related to the Betaseron at this point. The first one is insomnia. The Flexiril helps with this though (as long as I haven’t run out like I did this past weekend. grrrr). The other is really really bad acid reflux to the point that it is also very painful as the food passes down my esophagus. It’s not the swallowing that hurts but I can actually feel the food pass down my esophagus about mid-throat. This hurts really bad some days. Of course, I would get a side effect that is rarely known with Betaseron but according to my neuro this is one. Go figure!
Today is one of those days I wish I was just curled up in my bed because everything hurts.