I have a sister with MS. She is 4 years older than I am. She was diagnosed about 7 years ago (I want o say(although I could be wrong on this). After hearing news like this our whole family was shocked and just couldn’t believe it. Something inside of me said to bring this up to my primary doctor.
So off I go for the yearly exam just to check on whatever may be falling apart or not. I mentioned there was now a diagnosis of MS in the family and asked (hinted) about any testing that I could undergo to check me for MS. My primary just blew it off and said not to worry about it. I think he gave me the ‘MS isn’t inherited’ blurb. Well, I’m not very aggressive with certain things in my life and medical things are one of those sit back and let them tell me because I am not a doctor moment. I will ask a question but I won’t really get a firm response (or one that they have exhausted all options to make me feel secure in the knowledge). Even though I just let it go at the time, it was always a little nagging feeling I had.
Seven years later (or so) I am now diagnosed with MS. She and I do not share the same symptoms so that is different. But what are the chances that two siblings get this disease? It seems more than just a random occurrence to me. I want to shout at the top of my lungs for the rest of my sisters (I have 3 others) to go get an MRI….just to make sure. If there are no white spots on that MRI, then I would be the happiest person. But if there are, then I want them to get help sooner rather than later.
I haven’t asked my neuro doc yet about how long she thinks I have had this disease. I bet I have had it for twenty years of more (I’m 46 now). I’ve had symptoms throughout my life that have been diagnosed with one thing, or another, and another, and another. Some of those symptoms were/are eerily similar to those I have right this second with the MS diagnosis.
I’m amazed that I know more and more people diagnosed with MS. It seems way more prevalent than the figures out there. The one single nurse I had for the injection training goes out 3-4 times a week to train a new person. That is just ONE nurse in one tiny location of the country & world. It is only one nurse for a specific type of MS drug. This really shocks me.