It’s 6pm and I tell you I am so ready to just crawl in to bed and not have to talk or do anything else. Talking was crap today. Crap, crap, crap. Grrrr. I have been slurring like a drunken sailor! On top of that, I had a task to type out a bunch of addresses this morning so I could get to the post office. Okay, not really a bunch. Just about 25. Took me FOREVER! Might as well throw in all the issues I was having while eating too. It definitely was not normal eating. I was dribbling (ewww) and felt like I had to open my mouth super wide and then concentrate…yes, concentrate…on what I was doing and getting it chewed up. Licking my lips was also….weird. Hard to explain how that felt. My eyes have been doing some freaky things to. As I sit here they will start repeatedly blinking ….like a twitch almost. They also just feel like I can’t focus on anything at all. And talk about feeling spacey and tired. Might as well throw in that I tripped a few times too. Ugh.
For these types of symptoms this seems to have been the worse day for them.
Of course, it’s annoying when I’m repeatedly asked what I said. I get so frustrated that I just say STOP. I can’t help it. If you can’t understand me then just stop. Stop, stop, stop, stop. I just really wanted to scream. It’s so FRUSTRATING!!!!! My daughter (she’s 11) and I went shopping today. She is so understanding and ‘mature’ for her age. She ‘gets’ that I can’t help these things and she helps. But sometimes she goes into that ‘Ask Me A Million Questions” routine and today that happened a lot. After saying STOP about the 3rd time she did. She just says ‘It’s okay. I understand.’. And I honestly think she does.
I hope my sleeping is not woken by another headache. Last night the glorious headache arrived right about 2am. It always seems to be that time. It was a lovely headache behind my eye. Those suck. Well, all of them really suck.
SUCK SUCK SUCK SUCK BLECK!!! Yep, that’s how I feel.
Tonight a little worry has started to creep in to my head. My symptoms are noticeable today…a lot. They weren’t like that before I don’t think. Hell, I could just not remember. But it hasn’t happened for quite some time. Another reason I think it took so long for the diagnosis. Anyway, now I feel like they are worse so that makes me wonder how bad they will get. Am I going to be able to even talk a year from now? Will I be able to feed myself? Will my eyesight get so bad that I’ll have to have a service dog? Will I lose the ability to type or write? Really scary stuff now. *sigh*
Random Note here: I want to thank all those that have commented. It helps to know that someone out there knows what it is like. THANK YOU!!!!